February, 2017

Today, February 28th, is International Rare Disease Day! Today, thousands of people from all over the world come together to advocate for more research on rare diseases. Our grandson, Magglio, has Pompe Disease - a terrible muscle wasting disease - he is our hero, our inspiraton - a true warrior. Visit this website for more information on how you can help bring awareness to all rare diseases.  http://www.rarediseaseday.org/…/today

On a funeral service some time ago, Joe was talking to Deacon Jim about life…..and death.  Deacon Jim said “When does someone die, when does someone leave us……only when we stop talking about them.”  Our dear friend, Patti, lost her Mother recently - we called her to tell her how sorry we were and to reminisce about Kitty.  During the conversation, Joe told Patti when Deacon Jim had told him.  She told her son, Tom, and he was inspired to base his Eulogy on this at Kitty’s funeral service. ...