Rare Disease Day 2018

Stephanie Levin

Today is Rare Disease Day. Our sweet Magglio lives with Pompe Disease, a rare and brutal genetic disease that affects his ability to move, breathe, eat and talk. Despite this disease, and maybe because of it too, Magglio is full of courage, strength and heart. For all his physical limitations, he smiles and laughs and has more love to give then anyone I know. His disease is rare and his amazing attitude of positivity, love and courage is rare too. He inspires me and teaches me daily what it means to be strong, courageous and to never lose hope. I am so proud of him and and so very, very blessed to be his Auntie Steph. Magglio, all our Pompe kids, and all people battling rare diseases are my heroes. 
#rarediseaseday #pompewarrior #togetherwearestrong #pompestrong#hopeisinmygenes 
#lovethiskidsomuch #luckiestauntie